Have you ever wondered what it is exactly about the extra chromosome 21 that makes cognitive development in children with Down syndrome so challenging? Just this March researchers at the Sanford-Burnham Medical Research Institute published research that may have cracked the code on this one. The researchers have found that a protein called sorting nexin…
by Santhi Bhupatiraju, as told to Iliana Clift The shock of the diagnosis was so great that I needed several warm blankets to calm my shivering body. Still waking up from the anesthesia and exhausted from hours of unproductive labor prior to the surgery, I wanted to know about the baby. My husband had begged…
Kaitlyn was eleven years old when she stumbled upon a book I was reading. She brought it to me and, as if she had just discovered a brand new planet, she exclaimed with a sparkle in her voice, “Mom, these kids are like me!” My heart skipped a beat— she was obviously ready to learn…
April 8th, 2014 The National Association for Child Development and the NACD Foundation Announce the Appointment of Kaitlyn and Lisa Law as NACD’s Ambassadors for Down Syndrome. We are happy to announce that Kaitlyn Law, a 23-year old young lady with Down syndrome, and her mother, advocate, and cheerleader, Lisa, have been appointed as the…
by Sue McFerren, as told to Iliana Clift I knew the risks of having a child in my 40s, and I intended to love and care for every child God blessed us with, no matter what. Still, when Sonya was born with Down syndrome I was stunned. Recognizing that having a special needs child in…
by Mary Beth Franzen Here we go again. One would think I would be used to this by now, but I guess I’m not. The current “career consultant” for my daughter, Rebecca, isn’t going to work out. Time to go back up the chain of command and re-think this process…again. More red tape, more time…
Arianna is 13 years old. She happened to have been born with one extra chromosome, a fact that is neither positive nor negative but certainly has been a challenge for her in many ways. As parents we learned that the medical term is designated Trisomy 21. We feel very strong about using that term. Verbalizing…
By Ellen Doman Abby is a bright and chatty young lady. She recently turned seven and attends first grade at her local elementary school. Abby has been with NACD since she was almost three. By age four she was on age level for her auditory processing. She was reading high interest words and speaking in…
by Robert J. Doman Jr. and Ellen R. Doman National Association for Child Development One of the areas of parental concern for the development of any baby is the area of mobility. Watching a baby learn to crawl, creep, stand and walk are thrilling to all parents. As a parent we can see our child…
by Nancy Lyons It’s that time of year when many high school seniors look forward to being accepted to the college of their choice. In the Lyons household, there is big reason to celebrate, as Bobby learned that he was accepted to a college in New York state, where he plans to major in Sociology….