Milo’s Story: Thriving with a KCNH1 Mutation
Milo’s mom, Amanda Schlegel, shared this story with us. Milo was born with a rare KCNH1 genetic mutation, and Amanda’s account of his journey, from “failure to thrive” to bat boy, cheering section, and soon-to-be kindergartner, speaks for itself. We are grateful to be part of it. By Amanda Schlegel Hello! My name is Amanda…