Sanjana’s Journey

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As told by her parents Our daughter Sanjana was diagnosed with a rare chromosome disorder at five. At around two and half years she took her first steps, and her first words were only after she turned 5. Despite intensive Speech/ OT/ PT, her milestones came painfully slow. In the following years, she went through inclusive schools; and by the … Read More

Harini Weeratunga – Born an Artist

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by Staci Sargent I have always been moved by art—dance, music, sculpture, painting, and culinary creations. It excites my mind and heightens my senses. Imagine my joy when I was presented the opportunity to become the coach of a very talented young woman from Christchurch, New Zealand. Harini Weeratunga came to NACD at 7 years old. Her mother, Aruni, stumbled … Read More


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by Susan Garrett Tricia is a petite eight year old girl who is sure that everyone is her friend. She has Williams Syndrome, but she has no idea that she is any different from anyone in her first grade class. Symptoms of Williams Syndrome include a mild cardiac problem, poor muscle development, a small stature, and pixyish features. With the … Read More

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