Did you ever walk out of an evaluation and on the way home think of something you forgot to ask about in the evaluation? Did you ever think about the evaluation conversation the next day and think that you really didn’t get something the evaluator said? How about when you get a program activity that seems way above or below where you thought your child was? Has that ever happened? How about waking up in the middle of the night consumed with worry about your child and having no one to talk to about it, has that happened?

You have a coach for a reason. Good programs and good outcomes require a lot of communication with you and with us. Everything I mentioned in the first paragraph happens all of the time. You forget to bring things up. We’ve said something that you didn’t quite get. You are looking at a program activity that looks way too hard for your child to do or there are so many frequencies of an activity that you can’t even imagine how you could possibly do it. So, contact your coach. Your coach has answers and can get answers quickly and can give you that extra time you need to really sort something out and get it resolved.

One thing we tell you over and over is that the brain can change with the right input. Your child can change when you do program well and sometimes those changes happen way before four months are up. Not only is your coach available to celebrate accomplishments, but she is also there to pass the news on to your evaluator so that your program gets updated and you can move right along to new things. Programs are meant to be efficient and communication helps keep them that way. The reverse situation is true as well as it relates to program efficiency. If you cannot get your child to do an activity or you can’t access some equipment you need then the sooner your evaluator has that information the better. That makes sense, doesn’t it?

Program is a big deal in your life but there is a lot more going on than just programs. Families often have issues going on with their parents’ being ill, issues with jobs and helpers, relocations, weddings and all kinds of very major things to deal with as well as holidays and vacations. All of these things really do disrupt program and take time away from those activities. Wouldn’t it be wise to let your evaluator know so that the program could be adjusted for as long as it needs to be adjusted? Your coach can help make that happen.

A big thing that a coach can do is give you encouragement and listen to and understand your fears and worries. It is not easy having a child who is having difficulties of any kind. There often seem to be endless things to worry about and keep you up at night. We totally understand that. The important thing for you to know is that you aren’t alone in this. We are here to be of genuine help to you and sometimes that means just listening to what worries you the most and making sure that we are working on it with you. We are ready to support you on this journey.

If you are just using NACD to get evaluations and programs, you are missing out on a lot. We could be helping you find resources, get program done more efficiently and more happily. We can help with behavior issues, teacher issues, even grandparent issues. Don’t let all of our resources go to waste. Join the many parents who are great communicators and let us hear from you on a regular basis. We make a great team.

Reprinted by permission NACD Newsletter, November 2019 ©NACD

The post Why You Need to Talk to Us a Lot More appeared first on NACD International | The National Association for Child Development.

A lot of folks, particularly in the USA, have a hard time describing where in the world Romania is or are able to tell you much of anything about Romania (which unfortunately speaks to our educational system); but ask about Transylvania and everyone’s interest perks up and they conjure up visions of Dracula.

This last month I spent almost two weeks in the mountains of Transylvania with about 200 of our NACD family members from five different countries. We were practically under the shadow of Bran Castle, or what is widely known as Dracula’s castle.

This event was made possible through the efforts of many folks, but particularly little Tudor’s mom, Andreea Dumitru, and Teodora Pop, our NACD Romanian Coordinator.

Andreea’s efforts resulted in the advertising company Blitz TV sponsoring the event and arranging for free rooms and breakfasts for all of the families at the Cheile Gradistei Resort. Without this help many of the families would not have been able to participate.

There were two primary reasons for orchestrating the Transylvania Experience. The first was to provide a venue for an in-person evaluation for the children in the region, particularly Romania and Bulgaria, and the second was to provide an opportunity for the families to spend time together. To varying degrees families with children with developmental and genetic issues find it difficult to integrate their children into many, if not most, social situations. Getting to spend time with other families with similar issues who understand, permitting them to share support, encouragement, and to just be able to relax, accept, and socialize was a great unique experience. Sadly, Romania and the surrounding countries are often not very accepting of many of our children; so it was particularly important to hold this event in Romania.

Our Romania chapter, which includes many Bulgarian families, is certainly our most proactive NACD chapter, doing everything they can to support each other and to educate other families in their countries about the hope that NACD offers. Our families travel from around the country to participate and share their NACD experience at every possible event that they think might help another family learn about the hope for their children. They understand that NACD’s family-centered approach means that any family in any place in the world is only a call, an email, or a Skype visit away from their coach and evaluator on any day and that they can help their children irrespective of what may or may not exist in their area.

The feedback from the event from the families was outstanding, and everyone wants to repeat it next year, even with the understanding that we may not have funding assistance. At the families request, I have happily committed to coming back again next year (I didn’t have a chance to visit the castle on this trip, so I need another visit to Transylvania) and we will hopefully return to the same spot and show off and share the children’s progress and help generate some new memories to add to those we created this year.

Personally, it was a bit demanding. It took twenty-two hours to get there, arriving in the evening and starting the evaluations first thing the next morning; but it was truly a marvelous experience. These are incredible families! Being able to relax and interact with the families and share meals and a little down time outside of the evaluation process was extremely rewarding. Perhaps some of my greatest memories are of watching the children with issues and all of the typical siblings interacting together as naturally as if they had know each other forever. The typical siblings were amazing to watch. They instinctively knew how and when to help and how to communicate with or just be with a new special needs child they had just met minutes before. Speaking of communication, the majority of the parents spoke English and often an additional language or two, as did the children. I loved all the “Hi Bob”s I heard from so many of the kids who were just learning to talk as they walked in for their evaluations.

We have some hope that other NACD chapters and groups around the country and the world will come together and do more to help build their regional community of NACD families.

Lesson to be learned: We do better as part of a community that shares a common approach, common ambitions, and a belief that the primary responsibility for our children and the best people to help our children are we, the parents. We can make a difference and change the lives and futures of our children.

As always it is an honor and a privilege to be involved with such incredible families and children.

For more photos and a daily journal of Bob’s trip, please visit our Facebook page!

Testimonials from our Romania Attendees

TEODORA POP

I also wanted to write a few words about this experience, but it is so hard to write about everything in a couple of phrases.

For me it was an amazing and different and new experience, even though I am with NACD for 2 years and a half now and I´ve been before to Bucharest to help Bob with translations. This time I also took part in the organisation of the event and it was amazing. Meeting families for the first time, seeing other again and listening to everyone´s story, sharing opinions and advises and being there with Bob during the eval was a HUGE learning experience for me. I am confident that my decision to stay in Romania and dedicate myself to this cause and to the NACD families in Romania was the correct and the best one! I am honored and humbled working with the NACD staff and with all of you here in the Romanian chapter!!!

IOANA GRECU

The experience in Cheile Gradistei was beautiful and full of emotions. We waited eagerly for this moment. We couldn’t wait to meet Bob Doman, and the impression of him is a great one. We feel that he is a very good person and very involved in what he is doing. The kindness with which he is looking at the children makes you trust that what he is saying is good for the little ones. The parents are great, full of hope and positive. We left the place trusting in the NACD program and trusting in ourselves as a family that we took the best decision when we joined the program. The landscape helped us to relax and to spend some family quality time. Even though we had to leave earlier than scheduled, the presence of the other kids and parents made the days feel very short and filled with great moments. Thank you for everything!

IOANA RASPOPA

I need to say that we are grateful for a great weekend. Yes it was beautiful, but meeting with Bob (this time Matei was OK and awake comparing to last year) was a huge reinforcement for us. We also got really useful information from Teo and from other parents that gave us courage to push for more changes for Matei.

RALUCA BUSUIOC

You know what the experience at Cheile Gradistei makes me think at? We are thought that from the 3: frequency, intensity and duration, the most important is the intensity. So this experience was not as much duration as is was high intensity! Exactly like in the NACD activities: high intensity, so that you will want more!!! So that it will be forever in your mind and in your heart!

FELICIA TUSLUC

It was a great experience, both because of meeting people with which we share the same vision of recovery and of the joy in our children’s eyes enjoying the fresh air with us and other children like them. Meeting Bob face to face again revived our hope and trust in the complexity of the program and in our capacity to obtain great results.

PAULA SERBAN

For me this experience was revealing! I saw my child with different eyes and my soul was filled with hope. Meeting the other parents was as important, feeling their support and full understanding. To be able to talk with people that totally understand was something that I wished for for a long time. Besides the NACD family it is very difficult to find so much understanding and good advice. Now I feel that I have recharged ‘my batteries’ and we can keep going with so much hope. Thank you so much NACD!

RALUCA MANEA

It was wonderful seeing Bob again and getting to meet old friends that we have known merely in the on line. The children had a great time and loved to make new friends. It was a great time of connecting and reconnecting.

ALEXANDRA ANGHELINA

For us it was a first on multiple levels. Our first evaluation, first time meeting Bob Doman, first contact with a community of this type, first time seeing how a program looks like. So far we are loving everything that we discovered. We start this road filled with trust and extremely motivated to learn how to implement the program correctly.
The experience of meeting other NACD families was a great and interesting one. I can only bow in front of all this people that I got the chance to meet. They are an example worth following.

Thank you so much for this experience. And we cannot wait to see you all next year!

ANGELA HLATCA

For us, the Hlatca family, this year evaluation was another reason for hope and joy: after one year of vacation we finally were able to start the program again. We were happy to see Mr. Bob Doman again and he encouraged us and gave us new hopes for Tudor. This year´s location was a very beautiful one and we felt great there. The evenings were the best, having the opportunity to meet new NACD families and spend time together, to share experiences and to enjoy our beautiful children with which we played a lot. Mr. Bob Doman spent some time with us in the evenings and he is such a warm and very friendly person. A big thank you also for those who organised this very successful event!

Reprinted by permission NACD Newsletter, July 2019 ©NACD

The post 2019 Transylvania, Romania NACD Event appeared first on NACD International | The National Association for Child Development.

As many of you know, NACD is all about family. We encourage and empower parents to work with their children. We encourage and empower siblings to help siblings. We also encourage families working together to change mindsets about what truly is possible with our children, regardless of labels they may have received. I am so thankful to be able to interact and assist parents that want to help their children be all that they can be. One of the places I travel to is Chicago, and we have some great families there. Over the past year, we have had quite a few families start NACD from Davenport, Iowa. They all attend the same church and know each other well. It was a domino-like effect—one family started with their three children, then over six months we had 3 more families with all their children start on their NACD journey.

While each child has their own individualized program, the parents communicate frequently and exchange ideas on how to create intensity and how to organize their days. Many of them have large families, and they homeschool all their children. As you can imagine, that takes good organizational skills and time management! I am so proud of these parents who in such a short amount of time—some with 4 kids on an NACD homeschool program—have created an NACD atmosphere full of positivity, discipline, frequent bursts of input with high intensity, and developing responsibility in their children. And did I forget to mention that one mom had a baby over the past four months and one is having one in December? Are they teaching all their children all the subjects that would happen each day in the public school setting? No. They are teaching smarter. They are building the neurological foundation. They are accelerating processing. They are building up responsibility so that the children actively assist in keeping up the house (inside and out) and help with the younger children. They are hitting reading and math and are working to incorporate passions and interests that the children love to learn about. There are certain activities they can do as a family, and there are certain activities that have to be done 1:1. Some of these parents are also learning how to parent more effectively, understanding what behaviors are and are not appropriate. As a community they help each other in raising their children. When I met these families during evaluations in October, I saw really happy kids. I saw kids who were more mature, had higher levels in processing, and were going up grade levels in academics. I saw kids who really liked learning and were developing interests in building, cooking, money, and fitness. I saw children who were developing positive self-esteems and confidence. They are truly loved, not just by their parents, but also by their community—not to mention me!

Parents—it truly does take community in helping raise our children and to support us in the implementation of NACD programs. I know many of you reading this don’t feel like you have that sense of community. That is why we have created the NACD forum for all things NACD. The NACD forum is on the portal—the website you visit to upload your videos or to review your child’s program. If you log in, then on the top right is the heading “Forum.” If you click on that and hit “view,” you will see all the different categories. If you click on a heading, such as “Health and Nutrition,” you will see different threads about that topic. Feel free to post questions, comments, and suggestions on that particular thread of interest. This is meant to be a positive place for community! Give ideas on how you build intensity or share fun videos of your child accomplishing something new. Have a good app your child likes? Post it and why! As staff, we will post frequently and provide our feedback.

NACD Families can access the NACD Forum in the top-right corner of your Family Dashboard on the NACD Portal.

Please note:The NACD forum is not a place to market yourself or your business. It is not a place to share different program activities. Remember that each program we design is specific to YOUR child. If something on your child’s program needs an adjustment, please contact your coach. NACD reserves the right to take posts off the forum if they are negative and not relevant to helping build a positive community.

We are excited to have this for you and hope you will enjoy it!

NACD Newsletter, November 2018 ©NACD

The post A Sense of Community: Impacting Children in Davenport appeared first on NACD International | The National Association for Child Development.