A lot of folks, particularly in the USA, have a hard time describing where in the world Romania is or are able to tell you much of anything about Romania (which unfortunately speaks to our educational system); but ask about Transylvania and everyone’s interest perks up and they conjure up visions of Dracula.

This last month I spent almost two weeks in the mountains of Transylvania with about 200 of our NACD family members from five different countries. We were practically under the shadow of Bran Castle, or what is widely known as Dracula’s castle.

This event was made possible through the efforts of many folks, but particularly little Tudor’s mom, Andreea Dumitru, and Teodora Pop, our NACD Romanian Coordinator.

Andreea’s efforts resulted in the advertising company Blitz TV sponsoring the event and arranging for free rooms and breakfasts for all of the families at the Cheile Gradistei Resort. Without this help many of the families would not have been able to participate.

There were two primary reasons for orchestrating the Transylvania Experience. The first was to provide a venue for an in-person evaluation for the children in the region, particularly Romania and Bulgaria, and the second was to provide an opportunity for the families to spend time together. To varying degrees families with children with developmental and genetic issues find it difficult to integrate their children into many, if not most, social situations. Getting to spend time with other families with similar issues who understand, permitting them to share support, encouragement, and to just be able to relax, accept, and socialize was a great unique experience. Sadly, Romania and the surrounding countries are often not very accepting of many of our children; so it was particularly important to hold this event in Romania.

Our Romania chapter, which includes many Bulgarian families, is certainly our most proactive NACD chapter, doing everything they can to support each other and to educate other families in their countries about the hope that NACD offers. Our families travel from around the country to participate and share their NACD experience at every possible event that they think might help another family learn about the hope for their children. They understand that NACD’s family-centered approach means that any family in any place in the world is only a call, an email, or a Skype visit away from their coach and evaluator on any day and that they can help their children irrespective of what may or may not exist in their area.

The feedback from the event from the families was outstanding, and everyone wants to repeat it next year, even with the understanding that we may not have funding assistance. At the families request, I have happily committed to coming back again next year (I didn’t have a chance to visit the castle on this trip, so I need another visit to Transylvania) and we will hopefully return to the same spot and show off and share the children’s progress and help generate some new memories to add to those we created this year.

Personally, it was a bit demanding. It took twenty-two hours to get there, arriving in the evening and starting the evaluations first thing the next morning; but it was truly a marvelous experience. These are incredible families! Being able to relax and interact with the families and share meals and a little down time outside of the evaluation process was extremely rewarding. Perhaps some of my greatest memories are of watching the children with issues and all of the typical siblings interacting together as naturally as if they had know each other forever. The typical siblings were amazing to watch. They instinctively knew how and when to help and how to communicate with or just be with a new special needs child they had just met minutes before. Speaking of communication, the majority of the parents spoke English and often an additional language or two, as did the children. I loved all the “Hi Bob”s I heard from so many of the kids who were just learning to talk as they walked in for their evaluations.

We have some hope that other NACD chapters and groups around the country and the world will come together and do more to help build their regional community of NACD families.

Lesson to be learned: We do better as part of a community that shares a common approach, common ambitions, and a belief that the primary responsibility for our children and the best people to help our children are we, the parents. We can make a difference and change the lives and futures of our children.

As always it is an honor and a privilege to be involved with such incredible families and children.

For more photos and a daily journal of Bob’s trip, please visit our Facebook page!

Testimonials from our Romania Attendees

TEODORA POP

I also wanted to write a few words about this experience, but it is so hard to write about everything in a couple of phrases.

For me it was an amazing and different and new experience, even though I am with NACD for 2 years and a half now and I´ve been before to Bucharest to help Bob with translations. This time I also took part in the organisation of the event and it was amazing. Meeting families for the first time, seeing other again and listening to everyone´s story, sharing opinions and advises and being there with Bob during the eval was a HUGE learning experience for me. I am confident that my decision to stay in Romania and dedicate myself to this cause and to the NACD families in Romania was the correct and the best one! I am honored and humbled working with the NACD staff and with all of you here in the Romanian chapter!!!

IOANA GRECU

The experience in Cheile Gradistei was beautiful and full of emotions. We waited eagerly for this moment. We couldn’t wait to meet Bob Doman, and the impression of him is a great one. We feel that he is a very good person and very involved in what he is doing. The kindness with which he is looking at the children makes you trust that what he is saying is good for the little ones. The parents are great, full of hope and positive. We left the place trusting in the NACD program and trusting in ourselves as a family that we took the best decision when we joined the program. The landscape helped us to relax and to spend some family quality time. Even though we had to leave earlier than scheduled, the presence of the other kids and parents made the days feel very short and filled with great moments. Thank you for everything!

IOANA RASPOPA

I need to say that we are grateful for a great weekend. Yes it was beautiful, but meeting with Bob (this time Matei was OK and awake comparing to last year) was a huge reinforcement for us. We also got really useful information from Teo and from other parents that gave us courage to push for more changes for Matei.

RALUCA BUSUIOC

You know what the experience at Cheile Gradistei makes me think at? We are thought that from the 3: frequency, intensity and duration, the most important is the intensity. So this experience was not as much duration as is was high intensity! Exactly like in the NACD activities: high intensity, so that you will want more!!! So that it will be forever in your mind and in your heart!

FELICIA TUSLUC

It was a great experience, both because of meeting people with which we share the same vision of recovery and of the joy in our children’s eyes enjoying the fresh air with us and other children like them. Meeting Bob face to face again revived our hope and trust in the complexity of the program and in our capacity to obtain great results.

PAULA SERBAN

For me this experience was revealing! I saw my child with different eyes and my soul was filled with hope. Meeting the other parents was as important, feeling their support and full understanding. To be able to talk with people that totally understand was something that I wished for for a long time. Besides the NACD family it is very difficult to find so much understanding and good advice. Now I feel that I have recharged ‘my batteries’ and we can keep going with so much hope. Thank you so much NACD!

RALUCA MANEA

It was wonderful seeing Bob again and getting to meet old friends that we have known merely in the on line. The children had a great time and loved to make new friends. It was a great time of connecting and reconnecting.

ALEXANDRA ANGHELINA

For us it was a first on multiple levels. Our first evaluation, first time meeting Bob Doman, first contact with a community of this type, first time seeing how a program looks like. So far we are loving everything that we discovered. We start this road filled with trust and extremely motivated to learn how to implement the program correctly.
The experience of meeting other NACD families was a great and interesting one. I can only bow in front of all this people that I got the chance to meet. They are an example worth following.

Thank you so much for this experience. And we cannot wait to see you all next year!

ANGELA HLATCA

For us, the Hlatca family, this year evaluation was another reason for hope and joy: after one year of vacation we finally were able to start the program again. We were happy to see Mr. Bob Doman again and he encouraged us and gave us new hopes for Tudor. This year´s location was a very beautiful one and we felt great there. The evenings were the best, having the opportunity to meet new NACD families and spend time together, to share experiences and to enjoy our beautiful children with which we played a lot. Mr. Bob Doman spent some time with us in the evenings and he is such a warm and very friendly person. A big thank you also for those who organised this very successful event!

Reprinted by permission NACD Newsletter, July 2019 ©NACD

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It is natural for parents to feel concerned about how to help their children live fulfilling lives. Parents of children with special needs have additional concerns. My son, Mark Turner, was nine days old when he became paralyzed due to complications related to a congenital heart defect. He is now 39 years of age and enjoys a very rewarding life. We attribute a good deal of his success to the program developed by Bob Doman and the National [Association] for Child Development. I am so grateful for all the recovery Mark has experienced on this program and have the peace of mind that comes from seeing him achieve his dreams. Mark’s story is shared in the hope of inspiring others to believe in themselves, do the rigorous work that it sometimes takes to meet life’s challenges and to follow their own dreams.

Mark’s paralysis occurred in the lower portion of his body. He was originally placed on a traditional physical therapy program that utilized the best practices traditional medicine had to offer at that time. He made good progress and yet, when he was two years old, I was shocked to learn that the next phase of his program would be occupational therapy. The new goal would be to teach him to cope with his special needs. The widespread belief at that time was that significant neurological return was not likely to occur after two years from the time the paralysis began. Giving up hope for recovery was unacceptable, leading me to search for a program that would further the neurological development that he was still experiencing. Eventually we connected with NACD.

Bob Doman and his team, taught Mark’s brain about the part of his body that did not adequately receive neurological signals. Mark participated in the NACD program for about twelve years and made significant progress. One of my favorite examples occurred when he was about four years old. He was sitting in the seat of a grocery cart facing me and talking excitedly about something. All the sudden, he started moving one of his legs from side to side. Wow! He had moved this same leg from front to back, but never side to side! It still touches my heart to recall this precious moment.

While on the NACD program Mark developed a great deal of confidence in his physical abilities, and his self-esteem was significantly enhanced. He came to believe he could do anything he wanted to do in life and Bob was one of the biggest supporters of Mark’s ever growing confidence.

When Mark was 13 years old, he began participating in disability waterskiing. He loved it and his desire to improve his skills also became a strong teacher of his brain. Every time he would set a goal to reach his next challenge in slalom, trick and jump skiing, his brain had to figure out how to use his body in a new and very specific way related to each type of skiing.

Mark eventually became a national champion and was a member of the United States Disabled Water Ski Team competing in five world events. This provided the opportunity to travel throughout many countries, including England and two world events in Australia. He received the title of World Champion in slalom skiing, and has held two world records in this event. He has also held the title of Best All Around (slalom, trick and jump) for his division.

Mark is now making world history in a new way. A few years ago, he was doing exhibition skiing at tournaments for skiers who do not have physical disabilities. Exhibition skiing is a very important way to get the word out about disability skiing. While he was watching the other skiers, Mark realized he had a good chance of competing and placing. He has become the first skier in the world with a disability to win medals in his age category at tournaments for skiers with regular needs. Currently, he has placed in the top tier at the state and regional levels and has skied in the national championships.

In addition to his focus on tournament skiing, Mark works full-time for a major international travel company. He also serves as a volunteer at clinics, where he teaches people who have paralysis, amputations or visual impairments to learn to ski. He provides individual coaching as well for established skiers with or without special physical needs. Mark is also one of the co-creators of a contemporary documentary film about the history and empowerment of disability water skiing, H2O Effect: Disability Water Skiing From Beginning to World Championships! Here is a link to this 33 min. film:

Much of Mark’s incredible drive and self-confidence can be directly attributed to the tenacity he developed while participating in the rigorous NACD program. He and I would like to thank the team at NACD for all they have done, and to thank everyone who has supported this extraordinary organization in any way. To all the parents of children in programs at NACD, may you experience the kind of peace of mind and joy that we have found with NACD guiding the way.

Sincerely,
Chyril Turner

Reprinted by permission of The NACD Foundation, Volume 33 No. 3, 2017 ©NACD

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