Quite a few of you know my story and journey with NACD, but for those of you who do not here it is in brief: We started our journey with NACD in December 2008. At the time my son Grant, who was five years old, was completely non-verbal, developmentally delayed, a flight risk, very stimmy, and had behaviors out of control. My husband and I were desperate for change and NACD gave us hope that one day our son might be able to first and foremost communicate with us and secondly live a happy and fulfilling life. I am very pleased to say that through our journey with NACD these hopes have become reality. He is fully conversational, a delightful young man, and living his best life. We continue to push forward and raise the bar on the expectations of him reaching his full potential.

In December of 2021 my dream job came to fruition, working for NACD as a coach, supporting families just like mine. As coach and now well into evaluator training, I have gained a different perspective through working with both evaluators and families. This has caused me to reflect on my personal journey with NACD and through reflection there are some things I wish I had understood more fully earlier on.

I wish I understood then just how important processing activities are as the critical foundation to global development. The background information I brought with me had me convinced I needed to prioritize other activities I felt were more important, like reading and math. These things are of absolute great value and importance, but the reality is the higher the processing is in a child, the easier these subjects will be to learn, and not only to learn, but to retain. Push to build the processing and the academics will fall into place much more easily.

I wish I realized that each activity on my child’s program is put on program with a specific intent and purpose. There are no “fluff” activities on program. Each activity is an important piece in building your child’s brain. Your evaluator has reason and intent behind each activity as to why it plays an important role. If you are unsure what an activity is accomplishing or why it is on your child’s program, ask us! The more you understand your program, the more successful you will be at implementation.

I wish I embraced the concept of pushing chores, responsibility, and self-help skills earlier on. I had my children learn chores, but I did not quite fully understand the bigger picture of what is accomplished through having a mindset of increasing the list of things my children can do. When it comes to chores it isn’t so much about what kids can do but more about what is happening through the act of doing chores. Chores build confidence and independence in kids. The more confident and independent kids are, the more intrinsic motivation they have to not only take on learning new things but are not intimidated doing hard things. Confident children have a “can do” mindset and this mindset overflows into academics as well. When this happens, they aren’t intimidated by working a tough math problem or learning something new, but instead they readily take on the challenge and with joy! There is another big piece of development that occurs through building the list of things a child can do, and this is maturity. Maturity comes with doing things for oneself and through doing things for others. We are raising highly capable adults. Highly capable adults are confident, independent, and mature. Keep raising the bar on the things your child can do!

Lastly, what I would tell my younger self when first starting our journey with NACD: Know your child’s program thoroughly. Watch the video tutorials and read the handouts from time to time, not just when you get a new program. You will learn something new every time you do. Ask questions if you are unsure about any activities or if something just doesn’t make sense to you. Take time to educate yourself by reading Bob’s articles in the newsletters and watching his YouTube videos. There is so much to be learned and the more you know, the better you will be at implementing program. Your time and efforts working with your child will be more efficient and your greatest work will be right before you, your amazing and unique child well on his way to reaching his full potential!

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Our daughter Sanjana was diagnosed with a rare chromosome disorder at five. At around two and half years she took her first steps, and her first words were only after she turned 5. Despite intensive Speech/ OT/ PT, her milestones came painfully slow.

In the following years, she went through inclusive schools; and by the time she was fifteen started attending a pre-vocational skills center. Her pace of progress was painfully slow, but steady, nevertheless.

She was still not reading or writing without substantial help. The snail-paced progress and constant repetition were tiring us both out. It also affected us emotionally, not just physically.

When she was around seventeen, a compassionate fellow mom shared with us about her experience with NACD. We promptly went online to read details and case studies, and with a lot of hope in our hearts, contacted the NACD team.

After the first evaluation, we realized we were working truly hard to teach her, and she was working very hard to learn—but her brain was not ready for any learning! Her processing was at an extremely low level, and it was as if we were simply barking up the wrong tree.

Then came the program. At that point, I was also running a full-fledged design studio and had my hands full. I kept thinking about how I was going to implement this with our already overflowing schedules. But hope is powerful. It makes you stretch and do things you may not think you could do otherwise. We started the program, and just then covid hit India. Suddenly I was at home all day, her Center went online, and I could see her learning and her struggles, and we could manage our time better.

After regular rhythmic work daily, we saw growth pace had picked up. We saw that the otherwise snail-paced progress changed to seeing significant change every 4 months. Her processing level went up substantially and so did her learning! Improving her processing and acing the math facts gave her a much-needed base to proceed further. The reading, which was an activity she would dread and despise because of her intense struggle to perform the activity, changed to her enjoying the process. She still needs help to read, but it is with less struggle, more willingness and joy.

I now realize the value of a home program and chose to sell my design studio to be more available for Sanjana. While she is progressing well on the academic path, what helped us most is NACD’s focus on chores, independence, and skills. She’s independently doing many chores at home, picking up most skills needed for independent living.

We honed her love for arts and crafts into being a soap artist. She makes lovely natural artisanal soaps which we help her sell through her website www.thebluelephant.in. She’s independent in making soap, inventory logging, and many other tasks around it.

However, her biggest love is coffee and food. She is now a trained barista who makes amazing coffees and is currently pursuing a baking course. Her coffees are popular in the neighborhood, and they often drop in or order her coffee on weekends. Her signature is Orange Coffee!

We are constantly looking for creative ways to build skills in the most normative ways possible. Towards this, Lyn, our coach, gave us a fabulous idea to implement a home economy system where we transact at home to buy food and coffee, etc. This is slowly building her confidence and literacy around money.

In recent times, everyone who meets Sanjana can’t help but notice the change in her confidence, communication, comprehension, and independence.

As parents, what boosts our morale the most is the increased pace of progress and her ability to manage emotional outbursts. There was a time when meltdowns were frequent and would turn violent along with crying and screaming. Now not only have they dramatically reduced in number, but they are also more manageable. She can communicate even through those difficult moments and self-regulate to an extent. It is such a huge relief that they are no longer moments of insanity.

Lyn, our coach, and the team have just been phenomenal. Her advice and motivation keep us going on the right path. We are blessed to have them in our lives. Blessed to have found this wonderful program—NACD. And blessed to be able to hold this wonderful dream for Sanjana’s future of her living an independent, dignified life.

            • Reprinted by permission NACD Newsletter, July 2023 ©NACD

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