Back in May we introduced you to Coco Manole, the incredible little boy who was developing really fantastic processing abilities. This little brain injured/cerebral palsy four-year-old had developed astonishing digit spans of 10 forward and 9 reverse, which is absolutely phenomenal. Very few adults have short term and working memory at this level. Well, that was then and this is now. He was just getting started.

Just for the sake of perspective, shortly after starting program in July of 2016, Coco was just learning to process very simple one-step directions, such as “touch your nose” and was unable to follow a two-step direction. He was also only was able to say three words and understood no English.

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Video: One Step Directions

Coco today, not yet even having reached his fifth birthday, is doing much better. Coco’s improved processing has helped him in every aspect of his development. Developing motor skills for a brain injured/cerebral palsy child, from creeping on the hands and knees, to manipulating the hands to pick up food to feed oneself is much easier when they can take direction and think through and mentally manage all of the little pieces required to start learning and performing these apparently simple functions. The difference in developing motor skills in a child with good cognitive abilities vs. one with lower cognitive function is no different than trying to teach quantum mechanics to an individual with strong working memory compared to one without.

Coco is now amazing all of us with his extraordinary processing abilities. His forward digit span is now an amazing 16! His auditory reverse is now an unimaginable 13, and after just a couple of months since starting on visual digit spans, his visual digit span is already a 13!

Video: Auditory Forward 16

Video: Auditory Reverse 13

Video: Visual Digit Span 13

I hope that everyone will be inspired by little Coco. Although the majority of his day and program is dedicated to developing his motor function, we are certainly not ignoring his academic/intellectual development. Coco reads close to 500 words in Romania and English and enjoys reading books in spite of his visual issues, which we are addressing and improving as well. He understands addition and subtraction and identifies and labels literally thousands of items in some detail and is very conversational. In July when I met with the family in London for Coco’s evaluation, I had the privilege of having dinner with the family. Coco was not only totally tuned into our conversations, but was a polite active participant who could have served as a model for some college students I know. He is also perhaps the sweetest and most compassionate child you will ever meet and is doing great as a big brother to his little sister, Ellen.

I firmly believe that we all have the potential to function at incredible levels and our ability to fulfill this potential is only limited by our vision, our commitment, and our knowledge.

Lack of function is not a prognosis of what can be.

Congratulations, team Manole! You are an inspiration for us all.

Reprinted by permission of The NACD Foundation, Volume 32 No. 7, 2019 ©NACD

The post Coco the Wonder Boy – Part 2A appeared first on NACD International | The National Association for Child Development.

First the Vision, Then the Plan, and Then the Implementation

Most real successes begin with a vision, a vision that defines what we want to achieve. One would hope that we are all directed by and driven by a vision of what can be for us as individuals, for our children, and even for our communities, our nation, and the world. Having a vision, a direction, and hopefully a map to help us realize that vision, followed by conscientious implementation of the plan, determines the ultimate outcome.

For many, if not most, parents who have children with developmental issues, the world tends to make it extremely difficult to create an optimistic vision of what can be. Read virtually any psychological report on any child and you discover nothing more than an almost endless list of labeled “diseases,” issues, and problems, a disaster described in minute detail in ten thousand words, that ends without anything concrete that is going to make a difference. It’s difficult for virtually any parent who listens to the experts to believe there is any real hope, let alone a real plan to achieve anything close to an optimistic outcome. Make the diagnosis, attach the label, follow the “plan,” create no vision, and accept the outcome. Forget that your child has never existed before, that you who lives and works with your child every day have never existed before, and that your child’s future cannot nor should not be dictated by historic failures with “similar” children.

Limited or pessimistic visions of what can be are by no means limited to the special needs community. Virtually our entire educational system ignores the very tenants of neuroplasticity and the ability to build processing power—short term memory, working memory, executive function, and neurological/cognitive efficiency. The educational system functions like a NASCAR racing team given a stock engine who does nothing to actually build the horsepower of that engine, yet feels they are doing their job if they just run their car around the track. They certainly would consistently finish last, except for the fact that they would have been laughed off the track. But “education” continues to almost universally ignore the science and attempts to pour information into children’s brains without doing anything to really develop the brain. The reality is that it’s easier to increase a child’s horsepower than it is a Ford’s.

Realizing that it’s difficult for any parent to create and maintain a vision that is strong enough to sustain daily adherence to a plan and provide the strength of intention to keep moving forward, it’s fortunate that we have families like the Manoles to show us what can be. In a previous newsletter you read about Razvan and Christiana Manole, who had a vision for what they could be and how through dedicated use of our Simply Smarter program dramatically developed their processing skills. Their newfound processing skills helped them formulate a new vision and implement a drastic plan for their son Cosmin, aka Coco. This family, realizing the limited opportunities and prejudices that existed in their ancestral country of Romania toward children with developmental problems, formulated a new bold vision and moved to Ireland, a new country with a new language.

The Manole’s vision and plan for Coco is being realized. Razvan’s story and Coco’s video should be an inspiration for parents of children with disabilities and typical children alike.

Where any of us ultimately functions is not predetermined by what we were born with, but by the stimulation and opportunities that are afforded to us. Those opportunities are in large part dictated by the vision. Limit the vision, limit the perception of what can be, and we limit our expectations, the opportunities, and our futures.

Create a new vision of what could be, what should be, and what will be.

If you watch the video accompanying the following article and are not inspired, please watch it again.

Note: For those new to NACD who may not be aware of processing, short-term and working memory, forward digit spans are a simple measurement of short-term memory and reverse digit spans of working memory, which is now appropriately being called the new IQ. Forward digit spans for a typical four year old are 3-4 digits and reverse 2 digits. A typical adult has forward digit spans that are about a 7 on average and 5 reverse. These processing skills determine how much you take in of what you see and hear and the complexity of your ability to think- your cognitive function. It is very important.

Coco the Wonder Boy – Raising the Bar

by Razvan Manole

I would like to share a little story with you, hoping to encourage you or motivate you a little bit!

At this point, Coco processes 10 digits on auditory and visual forward and 9 reverse. I’m sure everyone in NACD knows what that means and how great this accomplishment is. How is it possible that a child with brain damage, at four and a half years old, has gotten this far? The answer is NACD and a lot of work.

Before we started the program, in 2016, Cosmin was more of a body at almost two years of age. He could process zero. After two weeks of the program, he could follow one step directions. That was at the end of July. In November he could process 3-4 directions. From there we focused on mobility and tactility as well as fine motor skills and vision. NACD works with the whole child so as these various functions and pieces are ready to improve, we work to improve them.

Probably like many of you, I have all kinds of questions like, “When will he walk, or when will he speak? When he will go to school alone? Can he do that?”

My biggest concern is about mobility. I have to work so hard for something most kids have without any effort and no one at all even appreciates it! In the desire to understand what is happening in my child’s head, I studied and studied all that is related to the brain. Last year I discovered a brain researcher’s story and it really helped me understand my son’s situation. After having had a stroke, this scientist practically lost all of her processing and became a body, processing zero. While she sat on a couch without moving, salivating and not understanding anything that was happening around her, she was happy and did not care. After reading the book she wrote, I realized that our children do not have our desires or our passions, our ideals and our goals. They don’t function with our goals or desire achievements that we want for them. This is all because they do not think with complexity until their processing is higher.

Then I said, “There is no point for me to want my son to walk if he does not want it! And how is it possible for him to want that? It’s not something that he had and lost. He never walked and does not feel the lack of walking, as I do not feel the lack of artistic skating. I’m not skating, I have no passion for that. I do not want to skate. Do you think I have a chance to become a skater?” And then I realized I should teach him to love to walk, to teach him what it means to walk, and what benefits he would have to be able to move independently. To understand my plan for him, he needed to be very smart. Last year, I believe it was in February, I started to be aggressive with the cognitive part of the program. From 4-5 auditory forward, we have reached 8 and 6-7 reverse. Now he is so aware. He understands what I am requesting of him, speaks Romanian and English, socializes, does not have tantrums. He is grateful, happy all the time. Walking is not easy to accomplish. There are many steps, but with much work and patience, we will get there too.

Probably you are not far away from us and you are struck by the distrust of family, friends, specialists, neighbors. No one has ever seen potential in my child except for NACD and us, his parents. It’s hard to keep a clear vision when you have unbelieving people around you. That’s why I wanted to write to you today! Keep your trust. My baby was just a body 3 years ago that could process zero. Slowly, together with Mr. Bob and Ms. Ellen, we woke him up and raised him way over the children of his age. If Coco can do it, all the children can! Trust yourself and your children! Good luck!

Reprinted by permission of The NACD Foundation, Volume 32 No. 5, 2019 ©NACD

The post Coco the Wonder Boy – Raising the Bar appeared first on NACD International | The National Association for Child Development.

Perhaps the only thing that feels better for us at NACD than having parents who really get it is seeing the results of them having gotten it.

It’s an incredible honor and privilege to be in a position to help change lives, and it’s so much fun and very fulfilling when we can see the results. You are about to read a mother’s story, sharing about the things she implemented and about being able to enjoy the fruits of her labor. You will be reading about Aidia Brennan, who is on her way to realizing her dreams. In Aidia’s case her dreams largely revolved around her love of singing. As I look at how Aidia is proceeding on her journey and reaching toward her dreams, it reminds me of one of my other “kids,” Jennifer Lindsay.

You might want to read about Jennifer, another one of our home-educated NACD kids, see where she started, and hear her inspiring story. I am delighted to report on where she is today. Jennifer had a really rough beginning, but she developed many talents and created many opportunities for herself, from her work creating the new generation of GPS systems, to her concert violin, to her singing. Jennifer ultimately decided that her real passion was singing opera, and as she has done throughout her life, she applied her superior processing power, focus, will, and the power and influence of her wonderful parents, and has excelled in her chosen vocation. I’m am very happy and proud to announce that Jennifer Lindsay has signed a contract with the Metropolitan Opera Company and will be performing in their upcoming production of the George Gershwin opera Porgy and Bess. I’m sure she will wow the audience, as she has during her performances around the country. Congratulations, Jen! My goal for our children is to help parents put together the pieces so that their children can function well—very well—but also to provide the children with the opportunity to discover their talents and passions and provide the means for their successful pursuit.

Just yesterday I did a Skype evaluation with Aliya, Aidia’s younger sister, who is doing great as a teen and is herself developing her neuro-developmental, educational, and personal pieces and is exploring and discovering her own talents and passions. Fortunately, Aidia was home in Canada for spring break from her college in England, and I had an opportunity to speak with her and catch up a bit.

Speaking with Aidia was a real delight; she is an amazing, mature, well-spoken, confident, respectful, and lovely young lady. Oh, and very talented as well! She really is the epitome of what we would all hope to see in our children as they pursue their goals and aspirations.

Liana and Gary Brennan, proud parents of Aidia and Aliya, congratulations!

Go team Brennan!

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NACD Instilling Independence
by Liana Brennan

NACD has been in our lives for years and in the past, I’ve said that our lives and children’s lives would be quite different without NACD! I appreciate the significance that NACD places on addressing the whole child and the child within the family. Our youngest daughter, Aliya, was first on the program when she was 4 years old and later, we brought our eldest daughter, Aidia, home from the public school and began a program with her in the sixth grade. We continued program and home educating Aidia until her graduation last May. Our NACD journey has been long and we’ve had some trying years but when the successes are achieved it makes it all worth it!

We are part of a large homeschool community with the same activities and opportunities afforded to them as the public schools. Our girls are able to participate in sports activities, yearbook committees, father-daughter dances, prom, and graduation. It is a large formal graduation and Aidia was selected to address the graduating class! One of the major points of her speech was to seize opportunities as they present themselves, embrace the unknown and break out of comfort zones. At this point she was already following her own advice. During her junior year, she began the university decision process and expressed her desire to study overseas.

This from a girl that dislikes change but realizes that in order to grow and succeed change is inevitable.

As parents it’s our responsibility and mission to raise children that are self-sufficient that will make a positive impact on society. As we sent off Aidia to university in England we prayed that we had equipped her with the needed life skills to thrive, not just survive. Thankfully she has adjusted well as she is living her dream! Technology has made it very easy for us to connect daily, either through FaceTime or text. Recently during one of our FaceTime sessions, Aidia thanked me for being strict and having her complete chores! I snickered because her interpretation of strict differs greatly from mine. I also wished I had a tape recorder handy to preserve her comment. Apparently, most of the other students are not self-sufficient which is causing them a multitude of stressors and health issues on top of the rigors of university. In November she shared that most the students had already depleted their student loan funds that were to sustain them through December. Huge contributing factors are the inability to cook or prepare meals, laundry and manage their personal finances. There are no meal plans in the United Kingdom like there are at most American Universities. They were eating out most nights and then with the realization that their funds were dwindling they begin to eat inexpensive fast food that was not sustaining them and they were falling ill. Aidia was cooking one night for one of the girls in an attempt to teach her some cooking skills. Aidia asked if her parents had not been interested or willing to teach her how to cook. The student shared her mother had attempted but she was more absorbed with her phone and her mother would get frustrated and end up preparing the whole meal. Aidia’s reply, “yeah, that wouldn’t fly in our home.” Aidia has the title of “mom” as she’s the one they turn to for life skills advice. Most days when we are on FaceTime there is a knock at her door with someone needing some assistance or advice.

During one of our FaceTime sessions Aidia said that she thought she would miss us more than she did and as I was recovering from her comment and from having the wind knocked out of me, thankfully she elaborated. She stated that she did miss us because we have fun; we enjoy each other’s company and our family game nights. A majority of the other students were homesick but not because they missed spending time with the family but for what their parents could and would do for them which is very sad.

We began instilling life skills and independence at a young age. When the girls were quite young, I designated two lower cabinets in the kitchen for plastic bowls, plates, cups and wooden tongs. Plus, all the snack and breakfast items that they could prepare themselves. I also kept a low stool in the kitchen to assist them in reaching the sink. I stored homemade granola in a small container with a flip-top lid and a scoop. It was much easier to handle than a large container. I kept the dairy-free milk and in a small container on the lower shelf in the refrigerator. This way they could prepare their breakfast themselves by placing a couple of scoops of granola in a bowl, wash up some blueberries and top it off with dairy-free milk. Using smaller containers made it easier to handle and if there was an “accident” there was a lot less clean up. I also placed items in the fridge on the lower shelves. To protect them from burns I purchased wooden tongs to use if they toasted some gluten-free bread. They were so happy they could make themselves breakfast and snacks and it promoted independence and confidence.

Both girls had “chores” on their programs. During an evaluation early on, Bob reviewed our chore chart and stated that their chores were a little “light” and we needed to increase their responsibility. I was excited that I had Bob’s encouragement to ramp up their chores. As they matured, we required more from them. It takes patience and a little extra time but the payoff is worth it. We have lots of memories and laughs as we recall eggs rolling off the counter (which happened more than once), or too much of an ingredient like salt or a spice as a recipe was miss read or the ingredient came out too fast, or an omission of an ingredient altogether! Some things that we included on their chore charts as they matured was preparing the family meal twice a week – planning – cooking and clean up, loading and unloading dishwasher, being responsible for their own laundry, feeding, walking and cleaning up after the dog, making their bed daily and maintaining their own room, cleaning bathrooms, dusting and vacuuming to name a few.

Their chores were their own responsibility and they needed to own them, and I did not want to hound or remind them daily. To remove myself from monitoring their chores I placed a chore chart for each girl in an acetate sleeve. Each chart was pushed pinned to a cork board on the kitchen wall with a dry erase marker (washable dry erase marker when younger). They passed the charts daily and it was up to them to check off the chores that were complete. They walked by the chart every time they entered and exited the kitchen so there was visual of what was complete and what still outstanding. If the chores were not complete there were consequences. At the beginning of the next week the acetate was wiped down and the new week began. This system worked wonderfully.

Aidia recently displayed her independence and willingness to jump all over the fear of the unknown and submit for a wonderful opportunity that produced a once in a lifetime experience! Aidia is pursuing a BA honors degree in Musical Theatre and has been inspired by Ramin Karimloo, a Musical Theatre performer, since she was eleven. Ramin has been performing on Broadway and West End for years and has portrayed Phantom in Phantom of the Opera, Jean Val Jean in Les Misérables and Anastasia to name a few. In July, he announced his UK tour. When not performing on Broadway or West End he travels with his band and performs songs from his musicals and other songs that he puts his own “spin” on. Aidia was so excited to hear that Ramin would be performing in Shrewsbury, England where is attending University! Right then and there she purchased a ticket. It didn’t concern her that she would be attending on her own, she was ecstatic that she would see him live! Unfortunately, she has not had the opportunity to see him perform live so this was a fantastic opportunity.

Aidia follows Ramin on social media and on Christmas day he posted that he would like to showcase local talent at the venues on his tour and if interested, and local to the venue, to submit media showcasing their talent. Aidia jumped on the opportunity and Christmas night she sent in various videos of her singing and playing guitar. When she headed back to Shrewsbury after Christmas early on the Jan 3^rd Aidia had not had a response so assumed she wasn’t selected. Upon landing on one of her layovers she checked her email and there was a personal email from Ramin informing her she was selected to open for him! We were so thrilled and excited for her! Ramin even introduced her!! Not many folks are able to say that they have met their inspiration let alone open for them! We were so proud of her and her performance.

Another way that NACD has impacted Aidia’s life is through the Simply Smarter program. Recently an industry leader came in to do a workshop with the students. One of the activities was a series of patterns. I may not have the activity exactly correct but the idea was that they were to stand in a circle and each student had a series of tasks to do simultaneously with the other students. They were to pass a ball to a certain student, speak a word or phrase, then walk to another student to pass the ball, speak another word and continue this pattern while everyone else was doing their own pattern. It was apparently quite chaotic and yet Aidia was able to remember her pattern and in some cases had to retrieve the ball from the student she was receiving it from because they were confused or forgot the pattern. At the end of the session the instructor inquired if Aidia had done this activity before because he had never had anyone complete the pattern successfully before and assumed she must be familiar with the activity. When she stated she had not he was amazed that she had managed to remember the patterns. Her response, “NACD’s Simply Smarter!” This was a great example of how higher processing can build memory assisting in academic and career growth. Aidia is often required to learn songs and dances in short periods of time. Higher processing will be a huge asset in her chosen field.

Through the years many of our days have been long and exhausting. On some of these days it would have been easy to allow the chores to slip, to address the laundry and cooking ourselves in order to shorten our day but at what expense? I can remember a particularly exhausting day when Aliya had pushed back and been defiant and argumentative. It was dinnertime and we had just completed program. Her father had just arrived home as Aliya began her chores. She proceeded to Swiffer the living room and saw her Dad on the sofa and stated, “I don’t know why I have to sweep when Dad is over there having the time of his life.” As you can imagine after a long day that remark just about sent me over the edge. After reprimanding her for her comment I explained that her situation was a result of the choices she made during the day, which meant she was now having to complete chores well into the evening. Thankfully these days are a thing of the past, but had we not persevered we would still be living these days. Currently, Aliya accomplishes her chores without complaint and enjoys meal preparation.

We recently relocated internationally and Aliya has adjusted well. She experienced some anxiety but with the tools she learned through NACD she has settled in fine. Aliya is meeting new people and is playing drums for her youth band at church. The church recently had a big event in which she played for the evening and afterward families sought her out to tell her what a great job she did and that they loved that she was a female drummer. She continues to take lessons and is progressing well. I believe that Simply Smarter has been a contributing factor to her progress.

We are so thankful to NACD and their desire to provide us with the instruction to allow our children to reach their full potential. As parents, we must be willing to let our children experience life but equip them with the tools to be independent and successful so they may pursue their dreams without any additional stressors.

Reprinted by permission of The NACD Foundation, Volume 32 No. 4, 2019 ©NACD

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