We Named Him Rohan
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by Santhi Bhupatiraju, as told to Iliana Clift The shock of the diagnosis was so great that I needed several warm blankets to calm my shivering body. Still waking up from the anesthesia and exhausted from hours of unproductive labor prior to the surgery, I wanted to know about the baby. My husband had begged to tell me the news … Read More

Troop of Two: Mission – Friends Beyond Borders
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by Prachi Sinha Recently I had the opportunity to host the most interesting event, and I have been anxious to tell you all about it. I received a request from the Israeli Embassy in India to host a group of 11 young adults with Down syndrome and 11 of their siblings/cousins. The embassy had requested for a mixer where the … Read More

Kaitlyn: Just Getting Started
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Kaitlyn was eleven years old when she stumbled upon a book I was reading. She brought it to me and, as if she had just discovered a brand new planet, she exclaimed with a sparkle in her voice, “Mom, these kids are like me!” My heart skipped a beat— she was obviously ready to learn that the children in the … Read More

NACD ANNOUNCES AMBASSADORS FOR DOWN SYNDROME
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April 8th, 2014 The National Association for Child Development and the NACD Foundation Announce the Appointment of Kaitlyn and Lisa Law as NACD’s Ambassadors for Down Syndrome. We are happy to announce that Kaitlyn Law, a 23-year old young lady with Down syndrome, and her mother, advocate, and cheerleader, Lisa, have been appointed as the Foundation’s Ambassadors for Down Syndrome. … Read More

Sonya
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by Sue McFerren, as told to Iliana Clift I knew the risks of having a child in my 40s, and I intended to love and care for every child God blessed us with, no matter what. Still, when Sonya was born with Down syndrome I was stunned. Recognizing that having a special needs child in our family would dramatically change … Read More

There’s No Place Like a Home-Based Business
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by Mary Beth Franzen Here we go again. One would think I would be used to this by now, but I guess I’m not. The current “career consultant” for my daughter, Rebecca, isn’t going to work out. Time to go back up the chain of command and re-think this process…again. More red tape, more time wasted, more waiting for other … Read More

The Driving Force – Shauya
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by Prachi Sinha You may have read earlier about Shauya Mehotra and his art in our newsletter. The latest feat for Shaurya is that he is driving a car! He may have Down syndrome, but he doesn’t let it stand in his way. From the clutch and the accelerator to the steering wheel, he is working the whole shebang. As … Read More

Arianna
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Arianna is 13 years old. She happened to have been born with one extra chromosome, a fact that is neither positive nor negative but certainly has been a challenge for her in many ways. As parents we learned that the medical term is designated Trisomy 21. We feel very strong about using that term. Verbalizing that our daughter had Down … Read More

Shaurya and Sasha
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by Prachi Sinha, NACD Neurodevelopmentalist in India Shaurya is a young entrepreneur with Down syndrome, and he has made me a very proud evaluator. Shaurya, along with another young man, Sashank (also with Down syndrome), runs a small business called Sasha. Sasha began its journey from Thailand about 2 years back when the moms of the two boys got together … Read More

Abby’s Road
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By Ellen Doman Abby is a bright and chatty young lady. She recently turned seven and attends first grade at her local elementary school. Abby has been with NACD since she was almost three. By age four she was on age level for her auditory processing. She was reading high interest words and speaking in short sentences. She enjoyed talking … Read More

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